 |
 |
Organizations
|
CANCER ORGANIZATIONS
American Cancer Society (ACS)
800-227-2345
www.cancer.org
Reach to Recovery an ACS program that assists women during hospitalization and immediately following by offering personal visits from survivors.
Access to services and programs are available in English and Spanish.
American Psychosocial Oncology Society (APOS)
1-866-276-7443 (1-866-APOS-4-HELP)
www.apos-society.org
APOS is dedicated to advancing the science and practice of psychosocial care and striving to ensure that all people with cancer have access to psychosocial services as a part of quality cancer care. APOS has a toll-free hot line for cancer patients and advocacy organizations to obtain referrals for local counseling and support services throughout the United States. The referral program aims to connect patients or patient advocacy organizations to psychiatrists, psychologists, nurses, and social workers skilled in the management of cancer-related distress.
The American Society of Breast Disease (ASBD)
1-214-368-6836
www.asbd.org
The American Society of Breast Disease advocates a multidisciplinary team approach to breast health management, and to breast disease prevention, early detection, treatment and research.
ASBD Goals are to:
Advocate a multidisciplinary team approach to breast health management
Provide a forum for consensus development
Deliver timely, authoritative and useful information to Society members
Offer professional development and education programs
Support a national breast disease research agenda
Build community among healthcare professionals
Through its policy statements, collaborations with other scientific societies and coordinated efforts with advocacy organizations, the ASBD advances the shared agenda of the healthcare professionals committed to a multidisciplinary team approach to breast health management.
Breast Cancer Network of Strength
1-800-221-2141 (English)*
1-800-986-9505 (Spanish)
*Translators available in nearly 150 languages
www.y-me.org
Provides information and support to anyone touched by breast cancer at www.y-me.org and through the 24-hour Y-ME National Breast Cancer Organization Hotline, staffed entirely by trained peer counselors who are breast cancer survivors. Ten Affiliates provide support groups, early detection workshops, wigs and prostheses for women with limited resources, and/or monitor local and state-level breast cancer related policies.
CANCERcare, Inc.
800-813-4673
www.cancercare.org
Services include support groups, educational programs, workshops and teleconferences. Oncology social workers are available in person, over the telephone, and through the web site. Access to services and programs are available in English and Spanish.
Cancer Information Service (CIS)
800-4-CANCER
For hearing impaired: 800-332-8615
cis.nci.nih.gov
Has access to comprehensive, accurate information from the National Cancer Institute on a range of topics, including the most recent advances in Cancer treatment. Staff provides materials at no cost, refers people to clinical trials, treatment centers, mammography facilities and other cancer organizations. Access to services and programs are available in English and Spanish.
Can SHARE: Self Help for Women with Breast or Ovarian Cancer
866-891-2392, toll-free hotline
sharecancersupport.org/index.php
This organization offers peer led support to women with breast or ovarian cancer, their families and friends. Services include hotlines, survivor led support groups, wellness programs, educational forums, outreach programs and advocacy activities. SHARE provides all of its programs in Spanish through its LatinaSHARE program.
Mesothelioma Center
www.asbestos.com
The Mesothelioma Center is an up-to-date resource for all mesothelioma (What is Mesothelioma?) issues ranging from mesothelioma statistics to diagnosis options. One of the most common forms of cancer caused by exposure to asbestos is lung cancer, a condition where the tissue cells within the lungs or bronchial tubes divide rapidly and uncontrollably with abnormal characteristics. In the United States alone, approximately 10,000 people die from asbestos-related illnesses, and many of these people are victims of lung cancer.
Susan G. Komen For the Cure
800-462-9273
ww5.komen.org
Dedicated to funding breast cancer research and education. The site celebrates survivors, has a calendar of breast cancer events, and hosts “talk back” a question and answer forum. It operates a 'helpline' for breast cancer patients and their families, staffed by survivors. Look for Race for the Cure in your area.
COMMUNITY BASED ORGANIZATIONS
Breast Cancer Network of WNY
716-688-9177
bcnwny.org
Western New York organization whose mission is to provide education, advocacy, support and networking in the community for people involved with breast cancer.
Sisters’ Network
sistersnetworkinc.org
A National African American Breast Cancer Survivors’ Organization. Sisters Speak message board is a place to discuss the unique risk factors African American women face, to promote education, and dialogue about ways to affect survival rates.
Witness Project
acrc.uams.edu/patients/witnessproject/default.html
A community-based cancer education program. Cancer survivors along with lay health advisors increase awareness by promoting screening and early detection in rural and lower income African American populations.
The Ulman Cancer Fund for Young Adults (UCFYA)
888-393-Fund
www.ulmanfund.org
The UCFYA mission is to provide support programs, education, and resources free of charge, to benefit young adults, their family and friends, who are affected by cancer, and to promote awareness and prevention of cancer. Services include professionally led support groups, survivors/loved ones network, educational forums, survival guide: “No Way! It Can’t Be”, A Young Adult Faces Cancer, educational material, college scholarships and patient advocacy / patient navigator programs.
Young Survival Coalition
youngsurvival.org
Dedicated to issues surrounding young women with breast cancer. Activities are mostly the New York metropolitan area, but the site provides a message board to find: e-mail buddies, survivors’ stories, and summaries of research articles.
The Mautner Project
mautnerproject.org
Extensive links and resources for breast health, clinical trials, general health, general cancers, lesbian health, directions for a self-exam and support services. Access to services and programs are available in English and Spanish.
Native American Cancer Research
natamcancer.org
Seeks to help reduce cancerincidence and mortality in Native Americans.
Includes access to cancer survivor network, GENA (genetic education for Native Americans), national events and educational resources and materials.
National Asian Women's Health Organization (NAWHO)
nawho.org
Works to improve the health of Asian women and families through research, education, leadership, and public policy programs. It has resources for Asian women in English, Cantonese, Laotian, Vietnamese, and Korean.
Genetics and IVF Institute
1-800-552-4363
givf.com
A genetics laboratory that publishes up to date information about genetic alteration in Jewish women that has been estimated to account for 20% of cases of breast cancer in the Ashkenazi Jewish population.
|
|
|
organizations